About Probably Genetic

Probably Genetic is changing the lives of patients living with severe, complex diseases. Our data platform is used by drug developers and patient advocacy groups to develop and launch treatments for these patients. Our technology discovers undiagnosed patients online, analyzes their disease state using machine learning and at-home testing, and enables compliant communication with patients. In doing so, we help patients access diagnoses, clinical trials, and treatments as early as possible. We are a tight-knit group of hard-working, ambitious problem solvers united by a mission greater than ourselves. We do well by doing right by patients. We are developing some of the most cutting-edge solutions in healthcare, and our roadmap is packed with innovations in bioinformatics, AI, and drug development. We have built a lean, all-star team to help us bring our vision to life, and we want you to be a part of it. Probably Genetic has raised multiple rounds of funding from Silicon Valley’s best investors, including Threshold, Khosla, and Y Combinator, and offer competitive salaries, comprehensive benefits, and meaningful early stage equity.

About the role

We are looking for a Head of Community Marketing to build and lead our community marketing strategy for the patients, families, and caregivers of the rare disease population we serve. You'll turn a scattered, often isolated population into an engaged community, and turn that community into a growth engine for Probably Genetic.

What you will do

Define and own our community marketing strategy, spanning virtual (social, online groups, content, email) and in-person (events, conferences, meetups, fundraisers) channels
Develop original campaign concepts to activate and grow patient and caregiver communities
Build and own relationships with patient advocacy groups (PAGs) and foundations across hundreds of rare diseases, strengthening existing partnerships and cultivating new ones
Test and iterate across tactics, including referral and email outreach, PAG partnerships and sponsorships, events, participant compensation, and paid media
Track how community efforts influence key metrics, including patient acquisition and CAC, and adjust strategy accordingly
Build scalable, repeatable playbooks for community-driven growth
Represent Probably Genetic at conferences, fundraisers, and community events with regular travel expected

Who you are

We are looking for a few specific things that will help you succeed in this role:

5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement (health/wellness fitness productivity or lifestyle products with passionate user bases are a strong fit)
A track record of building or significantly growing a community with active participation members creating content referring others organizing around the brand themselves
Creative instincts for community activation from concept to execution
Fluency in both virtual and in-person community building
Comfort using data to guide decisions and identify what's driving growth engagement CAC
Genuine empathy for engaging a sensitive high-stakes population; you never lose sight of the real people behind the community
Strong written verbal communication; you can shape a brand's voice adapt it to a high-trust context
Willingness to travel regularly for events partner meetings

Some things that are not required but you will learn on the job:

Familiarity with rare disease landscape or existing relationships within rare disease community

As with all new hires at Probably Genetic you will also need to be:

A good person We work with some of most marginalized populations on planet empathy is key
Patient-focused motivated to have lasting positive impact on humanity
Comfortable fast-paced often ambiguous environment rapid change

Additional info

Probably Genetic is committed to diversity & inclusion encourages candidates from all backgrounds to apply Accommodations can be requested during interview process.